Is there any treatment for Retinitis Pigmentosa?

American Academy of Ophthalmology answers:

Research has shown that Vitamin A can slow the progression of retinitis pigmentosa. Your ophthalmologist can advise you about the risks and benefits of Vitamin A and how much you can take safely.

Research is currently directed toward finding the hereditary cause of many types of retinitis pigmentosa. As hereditary defects are discovered, it may be possible to develop treatments to prevent the progression of retinitis pigmentosa.

Special low-vision aids and services can help people with poor vision continue doing many daily-life activities. Ask your ophthalmologist or contact the following organizations for more information and resources near you:

American Foundation for the Blind

11 Penn Plaza, Suite 300

New York, NY 10001

800.232.5463

http://www.afb.org

National Association for Visually Handicapped

NAVH New York City

22 West 21st Street, 6th Floor

New York, NY 10010

212.889.3141

http://www.navh.org

NAVH San Francisco

507 Polk Street, Suite 420

San Francisco, CA 94102

415.775.6284

http://www.navh.org

National Federation of the Blind in NC

NFB-NC

Gary H. Ray, President
18 Sandon Drive
Asheville, North Carolina 28804
NFB of NC: 828-505-0299
E-mail: ghraynfbofnc@charter.net
Mailing List Server: http://www.nfbnet.org/mailman/listinfo/nfbofnc
Web site: http://www.nfbofnc.org/

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3 Responses to Is there any treatment for Retinitis Pigmentosa?

  1. […] Is there any treatment for Retinitis Pigmentosa? « LVATUG blog – Is there any treatment for Retinitis Pigmentosa? American Academy of Ophthalmology answers: Research has shown that Vitamin A can slow the progression of retinitis pigmentosa. Your ophthalmologist can advise you about the risks and … […]

  2. anil tripathi says:

    pls send me information about on “latest research on retinitis pigmentosa”.
    i am suffering from it.\
    plzzzzzz help me………………………….

    • lvatug says:

      Anil,
      The best way is to go to the LVATUG blog and read the past articles on RP. Click on “retinitis pigmentosa” in the tag cloud, i.e. the list of topics under “My Tags”.
      Alternatively type “retinitis pigmentosa” in the “Search” box. This will bring up at least 50 articles aimed at the treatment of RP.
      Contact an ophthalmologist specializing in Low Vision. There is an extensive list in the “Local Services” page.
      Join the FFB, the Foundation Fighting Blindness. The US national office is (800) 683-5555. The Raleigh, NC, contact is Chris Stetkiewicz at (919) 781-8014.
      Start a nutrition regimen of Lutein and Vitamin A.
      I don’t know of any contacts in the Asian Pacific area. You might try Kar B, John S, Kumaramanickavel G.
      at the Department of Genetics & Molecular Biology, Vision Research Foundation, Madras, India.
      Another option is http://indiahealthtour.com/treatments/eye-surgery-india/retinitis-pigmentosa-surgery.html. They have offices in Madras and in Delhi.

      Good luck. This is a serious diagnosis, but there are things you can do now and lots of hope for the future.
      John Logan

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