Emotional Challenges for Individuals with Low Vision

August 15, 2016

The following is from Lauren Tappan.

Suggested Solutions for Emotional Challenges for Individuals with Low Vision
    Some of the low vision occupational therapists are able to help individuals with low vision work through their emotional issues regarding limitations due to the loss of eye sight. I have just received information from the lighthouse for the blind in San Francisco noting that they now have a low vision support group and a counselor assigned to the lighthouse for the blind who is another potential resource working through emotional issues due to facing challenges for people with low vision.
Lauren

Retinitis Pigmentosa Treatment in Cuba

August 3, 2016

The Cubans claim they are treating RP successfully. A Canadian ophthalmology journal casts doubts.

One controversial treatment, currently available in Cuba, consists of a combination of ozone therapy (removing a small amount of blood from the eye, adding ozone, and replacing it a short while later), electrical stimulation, dietary supplements and so-called “oligoelements”, and eye surgery under a local anesthetic. The rationale behind these procedures is to improve the supply of oxygen and nutrients to the affected parts of the eye.

As yet, this procedure has not been subject to critical review and, as such, remains outside the medical mainstream. The Cuban clinic where it has been performed has repeatedly refused to show the procedure to anyone outside of the clinic. As such, critical review is very difficult. There have been reports of physical damage to some patients including detached retinas, crossed eyes, and sensitivity to light.

Because of this, the RP Research Foundation in Canada and the RP Foundation Fighting Blindness in the U.S. have called the procedure into question.

For more info:

http://www.cnib.ca/en/your-eyes/eye-conditions/retinal-pigmentosa/Pages/default.aspx

 


Occupational Therapists Provide Help with Assistive Technology

July 20, 2016

This article is by Lauren Tappan.

Here are another few suggestions for low vision users of Assistive Technology. I recently was able to work with an OT from Therapeutic Solutions. Therapeutic Solutions is located in the Raleigh-Durham area. These OT visits were paid for by Medicare. I found the low vision OT very helpful and supportive. She was able to work with me on updating my IPad to make it visually, user friendly. I had many questions about the KNFB Reader. Because of her help, I am able to use a KNFB Reader to download books.
I now use my Google app to verbally dictate web searches. I am able to use the zoom feature on the IPad, which allows me to read and hear information in my email program. I was able to find short cuts for deleting emails in my email program and I am able to dictate responses to my emails.
I have also been able to download the BARD app. BARD is a free app service with the North Carolina Library for the Blind, which allows me to download books from their library. Because of her help, I was able to find an app that gives me updated flight information when I’m travelling.
She also encouraged me to buy a new pair of light sensitive glasses, which also screen Blue Light. These glasses have been very helpful for me in navigating on new side walks and streets, etc. You can find these glasses from Maxiaids. She was also able to help me with special techniques for the use of various equipment’s in our kitchen and laundry room, which has made use of these appliances easier for me.
For all of these reasons, I highly recommend low vision users of Assistive Technology equipment to investigate if there are low vision OT’s (Occupational Therapists) in your area. If you contact Therapeutic Solutions in the Raleigh-Durham area, they might be able to locate other OT’s in an area near you.
Lauren

Bisphosphonate side effect: AMD

July 16, 2016

Bisphosphonates, which are typically used to prevent osteoporosis, are some of the most prescribed drugs. They are known to increase the risk of inflammatory eye diseases such as scleritis, uveitis, and optic neuritis, and their pro-inflammatory properties may account for this increased risk as well as the flu-like symptoms that have been reported as adverse effects of their use.

The appearance of flu-like symptoms after use of the injected bisphosphonate zolendronic acid (Reclast/Novartis) has been attributed to the release of inflammatory mediators such as C-reactive protein. This common marker of systemic inflammation has been associated with coronary artery disease and implicated in the development of age-related macular degeneration (AMD), including its neovascular (wet) form.   –

See more at: http://www.hcplive.com/medical-news/oral-bisphosphonate-use-poses-risk-of-wet-age-related-macular-degeneration#sthash.7J2ZfBgI.dpuf


Bionic eye restores man’s vision

July 3, 2016

This article is from http://www.wkyc.com/

Steve McMillin learned at age 32 he had Retinitis Pigmentosa, a genetic disease that would stop his retinas from functioning. By 49, he was completely blind.

He kept up to date on new research emerging and heard about the bionic retina, a retinal prosthesis device that sends electrical impulses to the remaining retinal cells and restores limited vision patterns.

“They take the lens off the top of your eye, remove the vitrious fluid and install a six-by-ten grid of electrodes in your eye,” said McMillin.

Last June, Steve became the twentieth patient in the US to receive the device when he had his surgery at Cleveland Clinic’s Cole Eye Institute

He can see vague, black and white images.

“So you can tell, well, there’s the road, there’s a driveway, there’s a mailbox, there’s a shrub. Am I veering off track? It’s another tool in the toolbox and, boy, it’s a big tool,” McMillin says.

When asked what the most important thing he saw after ten years of blindness was, he replied, “To go out in the moonlight and see your wife’s face.”

Read more at on.wkyc.com/29e6JTB.

 


What a Computer Can Do for People with Low Vision

June 24, 2016

Your change in vision status is a good time to rethink how technology can help you maintain your independence. An accessible computer can be one of your most valuable tools. Consider just a few of the tasks of daily living you will be able to accomplish independently using a personal computer:

  • Keeping in Touch
  • Keeping up with the News
  • Handling Finances
  • Shopping
  • Reading
  • Saving Money
  • Staying Entertained
  • Reading your mail and other important documents

Computers use special programs, operating systems, and applications, to perform tasks as varied as solving advanced mathematics problems to displaying your grandchild’s latest artwork on a screen. Though it might seem that the majority of a computer’s functionality relies on vision, the truth is that text lies behind most of what a computer does, from calculations to web pages. And since text can be output in an audible format, under the right circumstances and with the right training, computers are actually highly accessible to people with visual impairments. Think of it this way: When you type an “A” on a computer keyboard, you can either see that letter show up on the screen or hear it read aloud.

For more info:

http://www.afb.org/info/living-with-vision-loss/using-technology/using-a-computer/part-i-access-for-the-novice-computer-user-with-a-visual-impairment/what-a-computer-can-do-for-people-with-visual-impairments/12345


iPad Pro & the KNFB Reader

June 14, 2016

The following is by Lauren Tappan.

  I am a low-vision user of the iPad Pro. I have found the iPad Pro to be extremely helpful when traveling. It’s nice to be able to check on departure and arrival times for flights and be able to read books and articles while I am waiting for the plane. It’s also been very nice to be able to continue to receive and send out emails while I’m away from my stand alone computer. I use the Zoom and dictation features on my iPad Pro, because of the Zoom and Dictation features I am able to navigate in different settings.
     Recently, I downloaded the KNFB reader app. The KNFB reader batch mode has allowed me to take photos and save at least 10-20 pages of a book or article that I will read at a later time. This has been an invaluable resource.
     It has taken some time to slowly incorporate this digital information into my life. As an example, I’ve saved several important palms and quotes for years. I’ve had these messages in my office and have not been able to read them without taking them off the wall and reading them with my stand alone CCTV. For this reason, I haven’t read these palms and quotes in a long time. Yesterday, I decided to take this important text off my wall and download it to the KNFB reader app. So now, I am able to have this text read to me whenever I’m interested. This may not seem like much to many but to me it means a lot to be able to read this text whenever interested.
    When we had a several hour wait at the airport recently, I was able to use the KNFB reader to read several Wallstreet Journal articles. This was also an invaluable use of my time.
    I strongly recommend low vision users of digital devices check out the KNFB reader.
Lauren

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